In my last update in November, I talked about how I was feeling good, and felt positive about my recovery. I spoke too soon. Another bone marrow biopsy in December, thankfully, was MRD negative confirming I’m still in remission. That’s the main thing. Otherwise, the last quarter has been setback … read more

I received some good news this week. The first full bone marrow biopsy results have finally come back following the CAR-T infusion, and it’s Minimum Residual Disease (MRD) negative. It doesn’t mean I’m cured but it supposedly makes it less likely that I’ll relapse any time soon. The CAR-T seems to … read more

I was hoping my next blog post would be a bit more positive. In fact, I wasn’t even going to write this but I’ve now had some time to come to terms with things, so here’s where I am. Life continues to lay dog turds in my path. Things were going well. I was 160 days post transplant … read more

Last week I reached another milestone - 100 days post-transplant. If all goes well, this is typically the time when I can come off the immuno-suppressing drugs, reduce other drugs, and start mixing with people again. I’m happy to say that things have mostly gone well. Thanks to Nurse Ratched … read more

I’ve just completed four weeks in isolation. My last update was the day before transplant day after undergoing a week of conditioning chemo. Transplant Day I was surprisingly calm the morning of transplant day. I put on my Unwind playlist and listened to some calming music. Rach, Lauren and my … read more

Here we go. Tomorrow is the big day. This week has been about undergoing conditioning chemo to prepare my body for the transplant. Most people hear the word transplant and think it involves surgery. In the case of blood cancers it’s simply a blood transfusion. I say ‘simply’, … read more

I’m back in the UK and the bone marrow transplant is happening. My last post was about 2 months into chemo. Since then, it has continued to be a roller coaster. I ended up having 6 cycles of chemo and spent 5 months in hospital (so far). We made the flights that we originally booked and … read more